<p>Bengaluru: The Organization for Rare Diseases India (ORDI) announced on Monday that it will host its annual flagship marathon ‘Racefor7’ across 15 cities on February 25.</p><p>Ahead of Rare Disease Day observed on February 29, the seven-km marathon aims to raise mass awareness about over 7,000 rare diseases documented so far. It also aims to create a sense of solidarity among patients and their families by enabling discourse about access to treatment options and resources.</p>.<p>This year’s theme is ‘One Nation, One Day - Together for Rare’. Organisers expect a footfall of 20,000 participants across Bengaluru, Mumbai, Chennai, Kolkata, Delhi, Pune, among 15 cities. The Bengaluru marathon will be flagged off by Kannada cinema actor Ramesh Aravind at 7 am from St Joseph’s Indian High School ground, Ashok Nagar. </p>.<p>“The focus is on enhancing access to therapies under policy guidelines, establishing an ecosystem for long-term care and support, fostering research and development, and ultimately creating a collective moment of ‘I care for Rare,” said Prasanna Kumar Shirol, Co-founder and Executive Director of ORDI.</p>
<p>Bengaluru: The Organization for Rare Diseases India (ORDI) announced on Monday that it will host its annual flagship marathon ‘Racefor7’ across 15 cities on February 25.</p><p>Ahead of Rare Disease Day observed on February 29, the seven-km marathon aims to raise mass awareness about over 7,000 rare diseases documented so far. It also aims to create a sense of solidarity among patients and their families by enabling discourse about access to treatment options and resources.</p>.<p>This year’s theme is ‘One Nation, One Day - Together for Rare’. Organisers expect a footfall of 20,000 participants across Bengaluru, Mumbai, Chennai, Kolkata, Delhi, Pune, among 15 cities. The Bengaluru marathon will be flagged off by Kannada cinema actor Ramesh Aravind at 7 am from St Joseph’s Indian High School ground, Ashok Nagar. </p>.<p>“The focus is on enhancing access to therapies under policy guidelines, establishing an ecosystem for long-term care and support, fostering research and development, and ultimately creating a collective moment of ‘I care for Rare,” said Prasanna Kumar Shirol, Co-founder and Executive Director of ORDI.</p>